After more than seven and a half years of nursing, it is like wearing a comfy pair of shoes. It is just what I do. And although I love all of the amazing changes and stages, we have had some rough spots. Nursing through pregnancy. Nursing aversion. Mastitis. Cracked and bleeding nipples that lasted well over a month. One of the most overwhelming was dealing with my children's food allergies while nursing.
But after more than five and a half years of it, I am surprised by how easy it has become.
When Ariana was a baby, I noticed that sometimes she would get tiny little bumps on her cheekbones after nursing. She seemed gassy and fussy fairly often (we used Mylicon on a regular basis), and sometimes when changing her diaper, she had a red, bull's-eye ring around her anus. I didn't realize that these were all signs of possible food allergies. We started solids at 6 months, and she was eating eggs, wheat, dairy, etc. by or before she was a year old.
When she was two and Joel was almost a month old,
he began screaming with every nursing session. He would arch his back and twist his head as far as he could. It was heartbreaking. I shared with some other moms on my breastfeeding board and the nearly unanimous response was to try eliminating dairy. I was desperate, and even though I am addicted to cheese, I began ruthlessly cutting out every trace of dairy from my diet. Within two days, I could see a dramatic difference. It took several more days for the dairy to completely leave his system, but he went back to the happy baby he had been as a newborn.
It was more than worth it to have him stop screaming, but it was incredibly daunting. Every bite of food became an ordeal. Grocery shopping took forever the first few weeks as I pored over labels. This was before they were required to list the top 8 allergens, and I was looking suspiciously at things like caramel coloring and wondering if they contained dairy. I can still remember the screaming and pain after I ate some clear broth soup that I was sure would be dairy-free, only to find out that it contained bouillon, which has dairy.
I really struggled with resentment when my husband was oblivious to the effort and frustration of every single bite. It was hard enough at home, but when we would eat out or with family and friends it was a million times worse. I hated having to grill them over every possible ingredient, but bringing my own food felt rude, too. One year at Thanksgiving, some family told me that they had made mashed potatoes without milk so that I could have some. Just as I was about to eat a bite, I noticed how creamy they looked and asked if there was any butter. "Oh, yes. We always put in lots of butter." I tried to smile as I explained that I couldn't eat them, but inwardly I was so disappointed, for both of us.
There is a lot of confusion about allergies, intolerances and preferences. I feared that a lot of people considered our dairy elimination as merely a preference and didn't take it seriously. At one restaurant, I ordered the meal without cheese. When it arrived with melted cheese all over, I politely explained that we were allergic to dairy, and sent it back. It came back with most of the cheese scraped off. :head desk. (For the record, even if that was merely a preference, I would find that terrible service from a restaurant).
It took weeks before I began to find my footing. Gradually, I built up a list of generally safe foods/brands. I still had to think about every bite, but it didn't take nearly as long. I missed my favorite foods a lot, especially cheese. I could adjust to rice milk, Smart Balance light, and coconut milk ice cream. I learned to adapt recipes, and thanked God daily for Oreos. But I never found an acceptable cheese substitute.
I had been eliminating dairy for several months when Ariana started showing more symptoms. Eczema breakouts, then hives. The hives only happened a couple of times, but I pushed hard for allergy testing. I wondered if I was making too big of a deal about it, if it was all in my head. Then the results came back.
She was allergic to dairy, wheat, eggs, corn, peanuts, olives and green beans. While a tiny part of me felt relief that it wasn't just my imagination, that was drowned by the sheer terror.
WHAT was left to eat that didn't contain any of those ingredients?!
Once again, we went through the weeks of poring over labels, looking up ingredients from restaurants on the Internet, and trying to adapt. This time it was harder because I had to explain to a three year old over and over why she could no longer have any of her favorite foods. She was a trooper, but it made me sad to deny her or see her left out at birthday parties or other places. She even reacted to the wheat in Play-Dough.
Her eczema cleared up, though. She was diaper-free at night as soon as we eliminated the wheat and she actually began sleeping all night. Her behavior changed noticeably, she was less irritable and aggressive with her little brother. We began eating more healthfully as a family (sometimes. We also indulged in junk food that was free of our allergens, just because we could). I also became a very inventive cook, because I was determined to say yes to my children's food preferences as much as possible, and also because I had to make food that was safe for the whole family that we actually wanted to eat.
Joel started breaking out in hives and having tummy issues just before he turned two. He seemed fine with dairy, and tests came back negative, but with incredibly high positives to corn, and lower reactions to black beans and pork. Before Elena was a year old, she was showing signs of allergies, too, including a trip to the ER after breaking our in hives the size of my fist from head to toe. All her tests came back negative, but she showed clear reactions to eggs and berries. When Amaya was a few months old she started reacting to corn and chocolate (woe is me!) and possibly to pork.
What I have learned from all this is that it gets easier. It is possible to breastfeed multiple kids while eliminating multiple allergens. The learning curve at the beginning is really tough, but once you adjust it becomes like any other discipline.
The allergy part is still confusing to me because of all the contradictory information out there. I won't tell you when to start solids and which ones, whether or not small amounts through breastmilk that don't provoke a noticeable reaction are good for desensitizing or if they increase the chances for the child to remain allergic, what role vaccines might play, whether or not alternative treatments are effective, or any medical advice, because I just don't know.
What I DO know is that after five and a half years of breastfeeding fool-allergic kiddos, I am happy with that choice. It isn't nearly as difficult now as it was even three or four years ago. (Thankfully, the kidlets have outgrown some of the allergies. I can have cheese now. But I think I would rather have chocolate. Sigh.) I am still more grateful than I can say to all the friends who patiently answered questions, encouraged me, commiserated with me, and helped us to be successful with breastfeeding through the challenge of so many food allergies.
Do you suspect food issues with any of your nurslings? Are you trying to navigate dietary challenges? Do you need a hug or an ear from other moms who have been through this? Your comments and questions are welcome! <3
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